IPOPI (International Patient Organisation for Primary Immunodeficiencies)
Noticias de International Patient Organisation for Primary Immunodeficiencies
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Meet Dr Inês Serra: 1st Place Poster Winner at IPIC2025
Among this year’s outstanding abstracts, three winners were selected to receive special recognition at IPIC2025, with a certificate, a grant, and the opportunity to present their work during a dedicated session. We congratulate Dr Inês Serra on achieving 1st place with her work, “Analysis of Genetic Overlap Between Inborn Errors of Immunity and Neurodevelopmental Disorders.” Her […]
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Thank You and See You in Mallorca!
We extend our heartfelt thanks to everyone who made IPIC2025 an unforgettable success! With over 900 attendees, IPIC2025 was a truly inspiring gathering of our global community—filled with learning, collaboration, and shared commitment to advancing care for people with primary immunodeficiencies. As we close this remarkable chapter, we are already looking ahead with excitement to our […]
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IPOPI Applauds EMA’s Positive Opinion on Waskyra™ for Wiskott-Aldrich Syndrome
IPOPI has welcomed the positive opinion issued by the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency (EMA). The opinion recommends granting marketing authorisation in the European Union for Waskyra™, a groundbreaking ex vivo gene therapy for Wiskott-Aldrich Syndrome (WAS), a rare and life-threatening primary immunodeficiency. “This marks a significant milestone […]
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IPOPI’s 2024 Review of Activities and Achievements
In 2024, IPOPI continued to bring the global PID community together — connecting patients, experts, and advocates across 75 countries to improve lives and drive progress in care and diagnosis for people with primary immunodeficiencies (PIDs). Highlights included the XVIII Global Patients’ Meeting in Marseille, new advocacy initiatives on plasma access and newborn screening, and […]
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The IPOPI Jose Drabwell Research Grant Programme Winners
The IPOPI Jose Drabwell Research Grant Programme is an initiative aimed at promoting scientific and clinical research in the field of primary immunodeficiencies. The second grant call in 2025, supported by Grifols and Kedrion, ran from April to August, inviting applicants from around the world to seize the opportunity to fuel innovation in the field […]
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