IPOPI (International Patient Organisation for Primary Immunodeficiencies)

Noticias de International Patient Organisation for Primary Immunodeficiencies

1. Mini-Doc: The Life Journey with Primary Immunodeficiencies

   

2. EU SoHO Regulation at the Midpoint: Strengthening Plasma Collection in the EU

   

     As we reach the midpoint of the three-year transition period foreseen for the implementation of the Regulation on Substances of Human Origin (SoHO), the International Patient Organisation for Primary Immunodeficiencies (IPOPI) wishes to reaffirm the central importance of patient-centred policy making and to highlight the urgent need to strengthen plasma collection in the EU […]

   The post EU SoHO Regulation at the Midpoint: Strengthening Plasma Collection in the EU first appeared on IPOPI.

3. Mini-Doc: Pulmonary Alveolar Proteinosis (PAP) – A Hidden Challenge in PIDs

   

4. New Educational Leaflet on SIDs is Out!

   

   Discover IPOPI’s newest leaflet on Secondary Immunodeficiencies (SIDs). Designed for patients, caregivers, and healthcare professionals, this educational tool aims to increase understanding of SIDs — an often under-recognised area of immune health. Through clear explanations and practical guidance, the leaflet educates readers on what SIDs are, the challenges of diagnosing and managing SIDs, and their […]

   The post New Educational Leaflet on SIDs is Out! first appeared on IPOPI.

5. Secondary Immunodeficiencies (SIDs)